I'm exhausted and we just got home this evening so this post may be all over the place. We got to the pulmonologists office on Wed. and they looked over Harrison's reports from our doctor and examined him. They told us that he would likely need to have a biopsy to rule out any cancer and a sweat test to rule out Cystic Fibrosis. They sent us to another part of the hospital to have some more bloodwork done and then we had to wait to see if it was "abnormal enough" that they would want to admit him. It turned out that his bloodwork didn't look to bad so they let us go home. Well, we couldn't actually go "home" but we did go to Rockford to stay at Bill's moms. We had to stay in the area because they had Harry seeing an oncologist the next day. Needless to say, there was not much sleeping done that night. Thursday we got up and got ready knowing that we could likely hear that Harry had cancer or had to have surgery to find out if he had cancer. We went out to eat lunch and then took him to one of our favorite parks in Rockford. He was coughing alot and was really tired so he didn't run around and play as much as we would have liked to see. I was about sick by the time we got to Chicago. It really started hitting me on the ride in that we could potentially be getting some horrible news. Once in the oncologists office, the doctor told us that there is definitely something going on in his lungs that should not be there, but that he didn't think it was any type of cancer. He didn't even thing it was necessary to put Harrison through a biopsy. He really felt that it looked more like CF or an infection. The pulmonologist saw us again and prescribed a couple of inhalers for Harry and told us our next steps were to do the sweat test for CF and to see someone with Infectious Disease. They also want Harry to have a TB test with our doctor here at home.
So, Friday (today) we went to Children's Memorial in downtown Chicago for the sweat test. We were hoping to see someone with Infectious Disease at the same time but couldn't get in. We haven't heard anything from the CF test yet.
While waiting to find out if they were going to have him seen with Infectious Disease at Children's, we got to thinking about how we had been cleaning out the basement for City Wide clean up week and had found some mold. This is another avenue that might be the cause of the nodules in his lungs.
Another concern I have is that Harrison is completely uninterested in eating. He hasn't been growing for a while and we need to get him eating more than this.
So, to sum it up....
They do NOT think it is cancer. YEAH!
We are waiting for the results from the Cystic Fibrosis test.
We have to have a TB test done this week.
We have to get in to see someone with Infectious Disease.
Another x-ray revealed the nodules are unchanged...not better, not worse.
4 comments:
How stressful. Glad it isn't the worst possibility of cancer, that is a huge blessing.
i'm glad they don't think it's cancer. that is good news! i know the feeling of not knowing what's wrong with your child and having to wait for tests. it was hard when we had to wait to find out what was wrong with jhet then being told he had to have a liver biopsy and a feeding tube put in was all very shocking and surprising. you just never think it's gonna be your child with something wrong. but i do think the mold issue is a good idea. mold can do alot of nasty things to people. hopefully you'll get some good answers soon
thinking of you!
I am so sorry you are all going through this...you're in my thoughts! I hope we'll see you around town or at a playgroup, but I totally understand how busy you are!
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